Privacy Notice – Prospective Clinical Trial Participants in the USA
The PatientWing community engagement and study enrollment pre-screening website at www.patientwing.com (the "Website") provides initial information about clinical trials that we are sponsoring and for which we are looking for participants, and allows you to register as a potential participant in these clinical trials. Comprehensive information about the clinical trials will be provided to you by healthcare professionals if you are eligible to participate in the clinical trials. This Privacy Notice sets out how we use and protect any personal information we collect through this Website.
When we say “we”, “us”, or “our” in this Privacy Notice, we are referring to Arena Pharmaceuticals, Inc., a Delaware corporation whose principal place of business is at 6154 Nancy Ridge Drive, San Diego, California, 92121 (“Arena”) (see https://www.arenapharm.com/).
The Website is hosted by VitalTrax, LLC, a Pennsylvania corporation limited liability company doing business as PatientWing (PatientWing), a patient recruitment company. Clinical trial sponsors such as Arena typically do not access patient recruitment data directly. PatientWing is our contractor for the purpose of providing and administering the Website platform and the associated collection and processing of your Personal Data on our behalf.
If you have any questions about our collection of your Personal Data (as defined below), please contact us at email@example.com.
Any data collected through the Website, including Personal Data, is only used to determine your eligibility for participation in clinical trials we run and to maintain the Website. Once collected, Personal Data will not be used for a different incompatible purpose without your knowledge and, where required by law, consent.
We take the protection of data privacy very seriously. All Personal Data collected through the Website will only be used and disclosed as set out in this Privacy Notice. Applicable data protection laws shall be respected in full.
Please note: Access to and use of the Website are not intended for use by anyone younger than the age of 18 and we do not knowingly collect Personal Data from individuals younger than the age of 18.
Please read this Privacy Notice thoroughly. If you disagree with the way Personal Data will be used, please do not use this Website or provide your Personal Data through the Website.
1. Purpose of data collection
The main purpose for the collection of Personal Data through the Website is to determine if you are eligible to participate in an advertised clinical trial and, if so, to share your Personal Data with healthcare professionals (investigators and members of the study team) involved in conducting that clinical trial. We will assess the Personal Data you provide to determine whether you are eligible for the clinical trial in which you express interest.
With your consent, if you initially are determined to be ineligible for the clinical trial, we may use your Personal Data to contact you by telephone, sms/text or email periodically until enrollment in the clinical trial has completed to re-assess your eligibility. You may unsubscribe from such communications at any time by contacting firstname.lastname@example.org.
With your consent, as an additional purpose, we will also use your Personal Data to determine whether you are eligible for any other or future clinical trials we conduct in which you have not specifically expressed interest. If you consent, we may contact you by telephone, sms/text or email about other or future Arena clinical trials in order to provide you with relevant information about such trials. You may unsubscribe from receiving this information about other or future Arena clinical trials at any time by contacting email@example.com.
We may use automated analysis tools to determine whether you are eligible to participate in our clinical trials, which will look at the eligibility requirements of the particular clinical trial and the information you have provided. This may result in you being declared ineligible for a trial in which you expressed interest or eligible for a trial in which you did not specifically express interest. We may use the Personal Data that you provide to contact you to ask if you would like to see if you are eligible for a different Arena trial.
Please note that where you have given your consent to any use of your Personal Data, you can withdraw or revoke this consent at any time by contacting firstname.lastname@example.org.
2. What Personal Data do we collect and process?
Personal Data means any information relating to an identified or identifiable natural person (i.e. living individual). For California residents, Personal Data includes all personal information as defined in the California Consumer Privacy Act (CCPA) – specifically, it includes information relating to a particular household as well as a natural person. For purposes of this Privacy Notice, Personal Data is limited to information about you that is collected through the Website.
We collect the following Personal Data through the Website:
1. Your Personal Contact Details
We collect certain personal details such as your name, location, email address telephone number.
2. Your Health Information
We collect details about your health and any conditions you may have, as well as details of clinical trials you have participated in in the past.
3. Browsing Information
The CCPA also provides the right to opt out of the sale of your Personal Data, when applicable. However, we do not sell your Personal Data, so this right is not relevant.
Right to Request Deletion:
Upon a verifiable request, made through one of the methods provided within the “Contact Us” section below, we will delete Personal Data we have regarding you and direct our service providers to delete your Personal Data from their records, to the extent required by the CCPA. Please note that Arena may be required or permitted by law to not remove (or allow removal) of your Personal Data.
Right to Be Free from Discrimination:
Arena will not discriminate against you for exercising any of your rights under the CCPA.
Information We May Need From You.
We may need to request specific information from you to help us confirm your identity and ensure your right to access your Personal Data (or to exercise any of your other rights). We may make this request directly if you have contacted us, or through PatientWing if that is more appropriate. Our request for information to confirm your identity is a security measure to ensure that Personal Data is not disclosed to any person who has no right to receive it. We may also contact you to ask you for further information in relation to your request to speed up our response.
Time Limit to Respond.
We will respond to all legitimate requests within forty-five (45) days, or as permitted by the CCPA.
CCPA Contact Information.
To exercise your rights under the CCPA, please contact email@example.com.
10. Nevada Residents
We do not sell Covered Information as defined under Nevada law. If you would like to make a further inquiry regarding the selling of your Covered Information, as defined under Nevada law, please contact firstname.lastname@example.org.
11. Notification of Changes
Should we wish to change this Privacy Notice, if you have already provided Personal Data through this Website, we will contact you to inform you of the new Privacy Notice and, in some circumstances, we may need to obtain your consent to the changes. In other circumstances, any such changes to this Privacy Notice will be promptly communicated on this page and you should check back to see whether there are any changes. If material changes are made to this Privacy Notice, we will notify you by placing a prominent notice on the Website and bringing these changes to your attention by email where reasonably possible for us to do so. We reserve the right to update and amend this Privacy Notice without prior notice to reflect legal and regulatory changes. Continued use of the Website after a change in the Privacy Notice indicates your acknowledgement of the use of Personal Data in accordance with the amended Privacy Notice.
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12. Further Information
For further information on Arena please visit our website – https://www.arenapharm.com/.
If you consider that we are not complying with this Privacy Notice or if you have any questions in relation to this Privacy Notice, please contact email@example.com. You may also lodge a formal complaint with your competent data protection authority.
© Copyright 2022 Arena Pharmaceuticals, Inc. Arena Pharmaceuticals® and Arena® are registered service marks of Arena Pharmaceuticals, Inc. All Rights Reserved.
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